Privacy and Health Information #0857

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June 24, 2008 , through August 5, 2013


Health information of both living and deceased individuals is collected in a wide variety of archival repositories from medical archives to local historical societies. What are the legal rights and ethical responsibilities that archivists and others should consider for access and use of this information? How do archivists adjudicate requests for access in compliance with legal and ethical rights to individual privacy? Register here for an overview of available access options and hear the discussion about compliance requirements to protect individuals’ privacy.

Following a question and answer format, the seminar explores:

Legal, regulatory, and ethical options for access and use of materials containing identifiable health and human subject information including -

  • The Privacy Rule of the Health Insurance Portability and Accountability Act (HIPAA)
  • The Federal Common Rule for Protection of Human Subjects
  • Ethical policies for protecting identifiable health and human subject information

And, policies, procedures, and practices for repositories to employ while administering access and use of materials containing identifiable health and human subject information including -

  • The concept of role-based access
  • The structure and operation of institutional review boards
  • Repository policies and procedures
  • Glossary of terms
  • Examples of forms
  • Guidelines for review of documents
  • Risk analysis and decision-making

Invite your colleagues, staff, or students to join you in learning together in the convenience of your own conference room, office, or classroom.

Archivists and librarians as well as historians and other researchers felt this seminar addressed important issues...

The presenters, Nancy McCall and Phoebe Evans Letocha, from the Alan Mason Chesney Medical Archives of the Johns Hopkins Medial Institutions were joined by John Hopkins University legal counsel, Joanne Pollak, with HIPAA expertise.


“It was great. I enjoyed the interaction between presenters and participants. We learned a lot about HIPAA which led to conversations about changes in our processing procedures.”

“I thought the topic and seminar were very good.”

“Format worked very well. The content was pretty detailed and legally technical, but Q & As provided a very good way to stay engaged. Having the lawyer, Ms. Pollak, participate was very helpful.”

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Conference Fees

Registration Type Fees: Early-Bird / Regular

Registrant Pass #0857

SAA Member $145
Nonmember $195

Conference Schedule

Event Name Date Time Instructors/Speakers & CEUs

Privacy and Health Information: A Guide #0857

Phoebe Evans Letocha
Nancy McCall